ALD LIFE aims to help all affected by or interested in adrenoleukodystrophy and adrenomyeloneuropathy, whether personally or medically. We will try and help you to become Aware, Learn and Discuss the many implications of this devastating disorder.
Art & Creativity For Healing
We facilitate Art & Creativity for Healing workshops for children and adults suffering from abuse, illness, grief or stress on-site, and at hospitals and non-profit agencies.
Blair's Tree of Hope
This foundation was formed by family and friends of 16 year old Blair Anderson, to Help Other People Everyday.
A bereavement camp for grieving children
Comfort Zone Camp for Grieiving Children
A fun and safe place for grieving children
Mission: To offer bereaved children the opportunity to remember their loved ones in a safe and healing camp environment.
The mission of Connor's House is to support children with complex health care needs, together with their families, by creating a community of support helping them to embrace each day and live life to its fullest.
Our Mission is to send children with Leigh’s disease, mitochondrial or metabolic disorders a gift, for them to enjoy, create memories, know they are special and provide support to the families who care for them.
A place where those coping with serious illness or death of a child can find hope and strength for the future.
Fight ALD Foundation
Another family who steps up to the challenge and gives HOPE through education after the loss of their perfect son Sawyer.
The Erika Whitmore Godwin Foundation is a 501(c)(3) nonprofit foundation dedicated to assisting parents who have lost a child, as well as family members, friends, professionals, and those who want to lend their support but don't know how.
Henry Tucker Foundation
Realizing the CANCER impacts countless families, we have taken great steps to share Henry's story to remind every family ripped apart by childhood cancer that "WE ARE NOT ALONE".
Heroic Journey - A Program for Grieving Teens
An Outward Bound adventure for grieving teens, offered in partnership with Judi's House, a support center for grieving families.
Hold The Door
Our Mission is to empower people to grow through loss and adversity and achieve their dreams.
Restoring Hope. Transforming Lives.
Hope Kids provides ongoing events and activities and a powerful, unique support community for children with cancer and other life-threatening medical conditions. We surround these remarkable children and their families with the message that hope can be a powerful medicine. Locations in Phoenix, Arizona; Minneapolis, MN; Salt Lake City, UT; Dallas, TX
The mission of the Isaac's Journey... "where HOPE begins" Foundation is to
educate and raise awareness of Childhood Cancer and help fund research
projects. We HOPE to change cure rates for our future generation as every
advancement in curing childhood cancer has come through research.
Knots of Love
Be part of a group that knits caps for those in need.
Lotsa Helping Hands
Create a free of charge, private, web-based community to organize family, friends, neighbors, and colleagues – a family’s ‘circles of community’ — during times of need. Easily coordinate activities and manage volunteers with our intuitive group calendar. Communicate and share information using announcements, messages boards, and photos.
Mega Photo Throws, another great keepsake for families in need
Personalized, keepsake photo throws and many more custom products. *A percentage of each purchase will be donated to Pediatric Cancer Reseach (Let Karen know you found her website through Evans please)
The Myelin Project
The Myelin Project is an international scientific research organization aimed at accelerating clinical and translational research focused on Myelin repair.
National Kidney Foundation
Kidney Walk 2009
80 Early Evaluation Programs Scheduled in February & March. Sign-up for one near you!
The National Kidney Foundation, Inc (NKF)., is the major voluntary health organization dedicated to preventing kidney disease, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation.
National Students of AMF Support Netword
The National Students of AMF (deceased or "Ailing Mothers, Fathers," or loved ones) Support Network is the only organization dedicated to supporting college students coping with the illness or death of a loved one and empowering all college students to fight back against terminal illness.
Newborn Screening for Early Diagnosis
The only hope for most genetic diseases is to diagnosis them early. Newborn screening is critical for early diagnosis.
Committed to stopping ALD
Precious Prints Jewelry
Using fingerprints from a loved one, we artistically create one of a kind designs that are the Most Intimate Personal Jewelry. Featuring the Ultimate Wedding Ring, Fingerprint Beads, Charms, Bracelets and MORE!
The Project, The Children's Rare Disease Network
To impact the lives of children with rare disease, their families and the organizations that support them by building greater awareness related to the prevalence of rare diseases and by becoming a catalyst for funding their critical efforts.
Ronald McDonald House Charities
Find a Ronald McDonald House to support by you, by volunteering your time, cooking a meal, collecting pop tabs and pennies, and/or making a donation to families devastated by a child's illness.
Savannah's Organic Ranch
Savannah’s Organic Ranch has been created to continue the legacy of Savannah’s passion for people, animals and nature by educating children and adults alike on the benefits of organic foods and farming to our bodies, our fellow living creatures, and our planet. We aim to spread the seeds of a healthier future by involving children in the organic process, from planting to harvesting, and then creating and enjoying healthy meals, and by doing so, empowering them to make choices that will better all. Finally, in addition to education and nutrition, our ranch will encourage philanthropy by involving children in the donation of organic foods to local food banks and other charities, as well as allocating a portion of funds raised toward easing the lives of children battling pediatric cancer.
Stop ALD Foundation
The Stop ALD Foundation funds innovative new research to jump-start the process of developing new knowledge and new therapies, which must often proceed at an excruciatingly slow pace when only funded by government sources. We also work to educate the medical profession and the public about ALD, raising awareness in order to improve detection, diagnosis and treatment.
Many Families, One Cause....Cure Childhood Cancer
The Evanosky Foundation
The Evanosky Foundation supports pediatric leukodystrophy research, universal newborn screening, and assists children and families affected by a leukodystrophy, lysosomal storage disorders, or other disabling pediatric conditions. We are a dynamic organization committed to seeing meaningful change and improvement in each of these areas.
The James Redford Institute for Transplant Awareness
JRI is a nonprofit organization dedicated to educating the public about the need for organ and tissue donation through film, educational outreach and the web.
The Moyer Foundation
To offer encouragement, comfort and support to children enduring a time of profound emotional, physical or financial distress and provide opportunities for enhancing overall wellness, stability and quality of life.
The Stennis Foundation
The Stennis Foundation is a non-profit organization committed to raising public awareness regarding the Leukodystrophies, as well as raising funds for Leukodystrophies research, and forcefully advancing toward a cure for these diseases.
United Leukodystrophy Foundation
The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and assisting the family members, professionals and support services that serve them. The ULF is committed to the identification, treatment and cure of all leukodystrophies through programs of education, advocacy, research and service.
Zac's Memory Chests
While there is little comfort you can give to a parent who has lost their precious child. We hope that this helps with their grieving. God has placed us on this path for a reason. We would like to continue this project and help other families dealing with this unbearable loss.
The goal of the Moving Hearts Foundation is to get people to move….to participate! Simple, and you can help. If you have not signed up with the Organ and Tissue Donor Registry, I am putting fire under you to act now. Go to Donate Life http://www.donatelife.net/CommitToDonation/.
It only takes a few minutes to sign up…. minutes that could mean years of life for someone else!
Team Will is a community of cyclists of all skill levels and ages committed to raising public awareness and funds for childhood cancer research through a mixture of cycling activities and events. Team Will's mission focuses on providing a coherent, credible voice to educate society about childhood cancer. We achieve this by working with cycling communities and interested individuals.
Wigs 4 Kids
Wigs 4 Kids is a non profit 501c3 organization that reaches out to kids and young adults with hair loss. They provide custom cut and styled wigs and services at NO COST TO KIDS AND THEIR FAMILIES! For more information on how you can help a child get a FREE wig log onto www.wigs4kids.org
National Donor Memorial
Honoring America's Organ & Tissue Donors